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She talks about how they are fitted, how to care for the stoma whether it is a colostomy or an ileostomy and cleaning and replacing the bag. Gail who’s a clinical stoma care nurse, talks about stomas and preparing stoma patients physically and psychologically for having a stoma in this short video. “A tight plain coloured leotard might show the bag!!!! Then again if you had to wear one you could always pop a t shirt over and there are alternatives for in the gym.” I'm not suggesting you do this but keep pressing your stoma nurses for advice.”Ĭommunity member, Ileostomy, colostomy and stoma support forum, ‘ Stomas, sleep, diets’ discussion thread. I did this a few times during the day and night for a few weeks.

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I had to stay awake to manage it, but it worked for me and the skin started to heal. “In the early days when I had a lot of sore skin (which bled) round the stoma (excoriation they called it) armed with gauze squares, old towels and waterproof bed squares I surrounded the uncovered stoma site to let the air get to it. You can get belts to hold them in place but my husband didn’t get on with that.”Ĭommunity member, Bowel (colon and rectal) cancer forum, ‘ Stoma’ discussion thread “The placement of the stoma is quite high, and he is finding it challenging to dress with a shirt tucked in, so far he doesn’t and opts for having shorts or jeans under the stoma and long shirts & tops.

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Well as my normal nutrition mode did exactly that, it hated me skipping meals, I thought why not try… I’m carrying on with my late night dry cracker snack.”Ĭommunity member, Ileostomy, colostomy and stoma support forum, ‘ Stoma sleep and diets’ discussion thread “My Stoma nurse recommended trying some late night dry crackers as she said that sometimes the ileostomy over reacts into a kind of starvation mode and out puts more. If you’d like to read more, click on the discussion thread link to join in the conversation or you can start your own discussion. If you have questions about the output, cleaning and wearing clothes, reading the posts below may be helpful. There’s no judgement here, just friendly supportive people wanting to share their experiences in the hope it will help someone in a similar situation. I didn’t really have time to think about managing the stoma showering, bathing ect.”Ĭommunity member, Ileostomy, colostomy and stoma support forum, ‘Newbie’discussion thread. I have to say the NHS team have been amazing, I feel so lucky to have been rushed through procedures, scans and finally the operation. I had my LAR August 4th and feel I can find advice on living with the stoma.

My Stoma nurses were amazing and really got me sorted with the right products and advice.”Ĭommunity member, Bowel (colon and rectal cancer forum), ‘ rectal cancer’ discussion thread There’s so many experts in managing a stoma here and I have found great tips.

“It’s very early days for you and it’s great you’ve found this group. It’s natural to have questions about stoma care and the Online Community has supportive spaces to get guidance from others who are also living with a stoma. In this blog, we’re highlighting some of the practical tips that our members have shared to manage their stoma. In the first part of the Stoma series, there was lots of reassurance offered in the different discussions and information of how to find further support.

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